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Links to HIV/AIDS-Related Web Sites
OVERVIEW
This page contains over 70 links to HIV/AIDS-related World Wide Web resources outside Kaiser Permanente that can help inform you about issues in understanding HIV and AIDS and their impact on your life.
In addition to materials in English, it includes materials in French, German, Russian, Spanish, and Tagalog (Filipino). Items that include content in a language other than English have those language(s) listed in bold type.
The information is organized into several categories, in the following order:
- General Information
- Treatment Information, including pharmacy issues such as ADAP (AIDS Drug Assistance Program) and Medi-Cal, expanded access and compassionate use programs
- Clinical Trials/Research
- Women's Issues
- Minority Communities
- Children & Teens
- Young Adults
- Dental Health
- Meals for people with AIDS
- Other Links
- For Healthcare Providers
Even the last category contains items of general interest to any HIV-positive person.
General Information
AEGIS (AIDS Education Global Information System)
The most comprehensive source of HIV/AIDS information on the World-Wide Web, including a daily news briefing, fact sheets on subjects from preventing HIV infection to treatment options and medication side effects and psychosocial issues of living with HIV/AIDS, on-line publications, reference material, and much more.
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AIDS Emergency Fund
Provides critical financial assistance to people living with disabling HIV/AIDS.
AIDS Healthcare Foundation
Provides cutting-edge medicine and advocacy, regardless of ability to pay.
AIDS Legal Referral Panel
Provides free and low-cost legal assistance and education on virtually any civil matter to persons living with HIV/AIDS.
AIDS Project East Bay
Committed to the prevention of the spread of the Human Immunodeficiency Virus (HIV) and to the provision of culturally sensitive and effective services to all persons and communities infected with and affected by HIV in Alameda County.
AIDS/HIV Nightline (San Francisco Suicide Prevention)
Providing telephone intervention to people experiencing suicidal crisis, the focus of the agency has gradually shifted from strictly suicide prevention to more general counseling services. Services are provided 24 hours a day by over 150 trained volunteers with the supervision of a small multidisciplinary staff.
Ask NOAH (New York Access to Health
Available in English and Spanish}, health topics include an introduction to HIV/AIDS, care and treatment (including care partners), opportunistic infections, gender/race/age, legal, and financial issues, and information resources.
the Body
Educational resource on HIV/AIDS and hepatitis prevention and treatment in both English and Spanish.
CDC National Prevention Information Network
U.S. Center for Disease Control and Prevention's site for HIV/AIDS, hepatitis, sexually transmitted diseases, and tuberculosis prevention in English and Spanish.
Destination Foundation
A 501c3 organization that grants dream trips to members of the San Francisco Bay Area community living with a life-threatening illness as alternative therapy to strengthen the mind, spirit, and body.
Gay Men's Health Crisis (GMHC)
New York community organization dealing with issues of living well with HIV/AIDS; connections among drugs, sex, and HIV; and HIV/AIDS advocacy in English and Spanish.
Genard AIDS Foundation
The Genard AIDS Foundation provides resident hospice and home attendant care at no-charge to People Living With Aids (PLWA'S) in Contra Costa County. In addition, we provide a 24-hour AIDS hotline for resource information and local AIDS education. Address: 1630 North Main St., Suite 102, Walnut Creek (510) 943-2437.
Healing Waters
Wilderness adventures for people with AIDS. Offers low cost trips specifically for people with HIV and AIDS.
Hospice by the Bay
A nonprofit, freestanding agency that provides hospice care in San Francisco and San Mateo counties. Hospice by the Bay is a Medicare, MediCal certified agency, and is JCAHO accredited.
Immune Enhancement Project
Provides improved quality of life in the community by offering high quality affordable Traditional Chinese Medicine treatments and education to individuals living with disabling conditions. These conditions include immune system disorders such as HIV/AIDS, cancer, hepatitis, and arthritis. They may also include psychosocial disabling disorders such as substance abuse, emotional distress, grief, depression, anxiety, and stress.
HIVInsite (University of California at San Francisco HIV/AIDS Knowledge Base)
Comprehensive up-to-date information on HIV/AIDS treatments, prevention, and policy around the world, including a knowledge base covering everything from epidemiology and the natural science of HIV to AIDS-associated cancers.
Kaiser Family Foundation
Unrelated to Kaiser Permanente, a source of daily news reports on HIV/AIDS-related issues ranging from public policy to medical issues around the country and across the world; available by e-mail subscription (from the web site) too.
Magnet SF
Promotes the physical, mental and social well being of gay men who live, work or play in the Castro. In addition to providing sexual health services, Magnet holds on-going community activities including book readings, art exhibits, town hall forums, and other social events.
National Association of People with AIDS (NAPWA)
Information about conferences, publications, and events; unfortunately with an out-of-date survey at the top of the home page.
National AIDS Treatment Advocacy Project (NATAP)
Information about HIV/AIDS and Hepatitis C co-infection, conference and Reuters-newswire reports, women and HIV/AIDS, and other issues.
National Library of Medicine HIV/AIDS Information
Links to sites in English and Spanish on many HIV/AIDS-related topics.
New Leaf: Services For Our Community A nonprofit multi-purpose counseling center for the lesbian, gay, bisexual and transgender (LGBT) communities of San Francisco and the surrounding Bay Area. Fees are set on a sliding scale based on income, and some services are free. Many of our programs also accept Med-Cal, private and group insurance.
Public Health Service's Veteran's Administration Strategic Health Care Group’s AIDS Information Newsletter
A service of the Veterans Health Administration, this newsletter has an overview of HIV disease and information about HIV testing, understanding lab tests, opportunistic infections, medicines, federal and State drug-assistance programs (ADAP), and clinical trials and research, among other topics.
Parachute Fund
Provides emergency financial support to members of the Bay Area dance community facing the free-fall of AIDS or other life-threatening illnesses.
PAWS: Pets Are Wonderful Support
A volunteer-based organization that helps improve the quality of life for persons with AIDS and other disabling illnesses by offering the emotional and practical support to keep the love and companionship of their pets, and by providing information on the benefits and risks of animal companionship.
Positive Resource Center
Assists people affected by HIV/AIDS through culturally appropriate counseling, education, and advocacy in making informed choices which maximize available benefits and employment opportunities.
Shanti
Provides education, practical assistance, and emotional support to people in need and shares its 29 years of experience with organizations nationwide through its training and consultation programs.
STOP AIDS Project
The mission of STOP AIDS Project is to prevent HIV transmission among all gay and bisexual men in San Francisco, through multicultural, community based organizing.
United Nations Joint Programme on HIV/AIDS
The premiere international organization dedicated to HIV/AIDS prevention, information, and advocacy.
Visual AID
Creates programs for artists who are confronted with the difficult issue between maintaining their health or career. Artists benefiting from Visual Aid’s services create and exhibit artwork enjoyed by thousands of people in the San Francisco Bay area and elsewhere.
Treatment Information, including ADAP (AIDS Drug Assistance Program) and Medi-Cal, Expanded Access and Compassionate Use Programs
AIDS Drug Assistance Program (ADAP) Information from the AIDS Treatment Data Network
State-by-state information about AIDS Drug Assistance Programs (ADAP), which provide access to HIV/AIDS medicines to those who meet medical and financial eligibility criteria. Includes information about each state’s eligibility requirements, application procedures, covered medicines, insurance assistance, and availability of nutritional services. The programs are funded by a combination of federal and state money.
AIDS Drug Payment Assistance information
Information about patient-assistance programs to help pay for medicines through ADAP, drug companies, and buyers’ clubs.
California Local Care Consortium and AIDS Drug Assistance Program (ADAP) information from the AIDS Treatment Data Network
California main page for the AIDS Drug Assistance Programs (ADAP). Includes links to a list of county care consortiums (programs responsible for HIV/AIDS-related benefits under the Ryan White CARE Act), the list of medicines covered by ADAP (called the “Formulary”) in California and, for most covered medicines, a page of basic information about what it is used for, how to take it, any warnings about it, and side effects and how to manage them.
amFAR (American Federation for AIDS Research)
Publisher of a free quarterly printed directory of treatments for both HIV/AIDS and opportunistic infections and major funder of HIV/AIDS research.
ATIS (HIV/AIDS Treatment Information Service)
U.S. national Standards of Care for adults and children with HIV/AIDS. Includes information about when to start treatment for HIV infection, possible choices of what medicines to use to start treatment, when to switch treatments, etc.
CATIE (Canadian AIDS Treatment Information Exchange)
Sponsored by Health Canada, HIV/AIDS treatment information in English and French. Note that some medication names are different in Canada from those used in the United States.
Expanded Access and Compassionate Use Programs
Information on availability of medicines nearing approval for general use made available in advance to people who are failing other treatments.
Project Inform
Treatment and advocacy information in English and Spanish from one of the oldest and most reputable HIV/AIDS sites on the Internet (located in San Francisco).
San Francisco AIDS Foundation
Treatment, prevention, and public policy information in English and Spanish; publisher of BETA, a free quarterly publication with feature articles about treatment issues and several ongoing departments, such as News Briefs and Women and HIV.
Clinical Trials/Research
ACTIS (AIDS Clinical Trials Information Service)
Listing of clinical trials for HIV infection and opportunistic infections across the U.S., sponsored by the U.S. Department of Health and Human Services.
Centerwatch
Listings of HIV/AIDS clinical trials, profiles of research centers, and related resources.
ClinicalTrials.gov
U.S. National Institutes of Health-sponsored site with a wealth of information about clinical trials that are recruiting participants, understanding clinical trials, and related issues.
Women's Issues
WORLD: Women Organized to Respond to Life-threatening Diseases
An Information & Support Network By, For, and About Women with HIV/AIDS
Lyon-Martin Women's Health Services
Primary care, gynecology, primary care for HIV+ women, breast cancer early detection program provider, support groups, community forums, health care for the homeless, comprehensive primary care and gender reassignment services for transgender people, smoking cessation classes, substance abuse education and screening for gay, lesbian, bisexual and transgender women and girls.
Minority Communities
Asian & Pacific Islander Wellness Center: Community HIV/AIDS Services
San Francisco-based organization devoted to HIV/AIDS issues for Asians and Pacific Islanders, including issues of living with HIV, safer sex, HIV and STD testing, gay men, women, transgenders, and youth.
Black Coalition on AIDS
The mission of the Black Coalition on AIDS is to stop the spread of HIV/AIDS in the Black community through education, service, and advocacy. BCA promotes collective, comprehensive, and compassionate care for those infected with, and affected by, the disease.
Dolores Street Community Services
Provides neighborhood-based shelter, housing, advocacy, and support for people seeking dignity, health, and hope in San Francisco. We accomplish this primarily through housing and support services for the marginalized: working poor, immigrants, and people living with AIDS.
Filipino AIDS Hotline
25 Van Ness Ave., Ste. 660
San Francisco, CA 94102
415/864-5855, FAX 415/552-1583 800/FIL-AIDS (Northern California only)
Filipino Task Force On AIDS
1546 Market Street
San Francisco, CA 94102
Resources for Filipinos in English and Tagalog with HIV/AIDS providing prevention information, case management, emotional support and counseling, treatment information, language interpretation, a discussion board, and other services.
Mission Neighborhood Health Center (no web page)
Address: 240 Shotwell Street, San Francisco, CA 94110. Telephone: (415) 552-3870.
National Minority AIDS Council
National organization devoted to HIV/AIDS issues of people of color, including treatment and prevention issues in English and Spanish, and community organizations.
New Mexico AIDS InfoNet
Fact sheets in English and Spanish on HIV/AIDS, prevention issues, tips for using HIV/AIDS services effectively, treatments for HIV and opportunistic infections, medication side effects, alternative and complementary therapies, and links to other sites. Provided by the University of New Mexico's School of Medicine.
Office of Minority Health Initiative on HIV/AIDS
Information on HIV/AIDS prevention, living with HIV/AIDS, and a wealth of links to other resources for African, Asian, Hispanic, Native American, and Pacific Islander communities, provided by the U.S. Office of Minority Health.
Children and Teens with HIV/AIDS
Camp Sunburst
Serving families throughout Northern California, Sunburst Projects remains the only local AIDS organization solely committed to addressing the social, emotional, and psychological needs and care of HIV/AIDS children and families.
Elisabeth Glaser Pediatric AIDS Foundation
Devoted to children with HIV/AIDS, including fact sheets about the special issues of caring for children with HIV/AIDS, medicines, and adherence to medication schedules for children, long-term survivor studies, financial support, and links to other sites.
LYRIC: Lavender Youth Recreation and Information Center
Brings LGBTQQ youth together to build a peer-based community that empowers them to end isolation; create a progressive queer youth voice; increase well-being and self-esteem; and change the communities in which they live. LYRIC accomplishes this by offering peer-based education, advocacy, recreation, information, and leadership opportunities.
Young Adults
Bay Positives
The mission of Bay Area Young Positives (BAY Positives) is to help young people (26 and under) living with HIV/AIDS live longer, happier, healthier, more productive, and quality-filled lives.
National Pediatric AIDS Network
A wealth of links to information about all kinds of topics for children and teens with HIV or AIDS, including recreational resources, treatment issues, legal issues, and information in Spanish, German, and Russian.
Meals for People with AIDS
Project Open Hand
"Meals with Love" and nutritional counseling for people with HIV/AIDS in San Francisco and the East Bay.
Dental Health
HIVdent
Dental health resources for people with HIV. Parts of this site are intended for dentists. It also offers information on mental health, nutrition information, and several other topics of general interest.
Other Links
Academy of Friends
Founded in 1980 by Kile Ozier as a small, private Oscar Night party. Over subsequent years, the party became an HIV/AIDS fundraiser, a reaction to the toll HIV was taking on the local community. Today, it is one of the largest contributors to Bay Area HIV/AIDS service organizations, distributing in excess of 4 million dollars over two decades. Through the generosity of individual Underwriters, gala ticket buyers and an illustrious collection of corporate donors, Academy of Friends is able to continue to support the vital work of organizations providing critical services to those living with HIV and AIDS.
DIFFA: Design Industry Foundation Fighting AIDS
Presently observing its 20th year as one of the largest funders of HIV/AIDS service and education programs in the U.S. Since its founding in 1984, DIFFA has mobilized the immense resources of the design communities to provide over $31 million to hundreds of AIDS organizations nationwide.
Legacy Oral History Project - Living/Dying Project
During the last decade of the twentieth century, the American concert dance community has been often reminded of the ephemeral nature of its art form. In addition to the passing of a first generation of modern dance pioneers and other elders, we have also lost younger artists in mid-career to the devastation of AIDS. To counter these losses, a growing national trend developed toward preserving our heritage through enhanced documentation and preservation activities.
National AIDS Memorial Grove
The National AIDS Memorial Grove is a living tribute to all whose lives have been touched by AIDS. Our mission is to provide a healing sanctuary, to increase awareness of this national treasure, and to promote learning and understanding of the human tragedy of the AIDS pandemic.
Under One Roof
Founded in 1990 as a small retail shop, the proceeds from which are given to local AIDS Service Organizations (ASOs). It is a collaborative effort run primarily by volunteers—-behind the scenes and on the floor. A growing group of generous corporate partners continues to support our efforts, and vendors’ donations and discounts have increased exponentially. Under One Roof has raised and distributed more than $9.4 million for ASOs. Thanks wholly to the collaborative effort of friends—-corporate, vendor and individual—-Under One Roof rededicated itself to raising and distributing unrestricted funding for the fight against AIDS, and in 1999 relocated under a new, larger roof at 549 Castro Street.
For Healthcare Providers
American Academy of HIV Medicine
While mostly for medical professionals in AIDS care, this site also offers a library of handouts on various issues for people who are HIV-positive, including "AIDS 101," information for the newly diagnosed, mental health issues, nutrition, AIDS-defining illnesses, and women's and children's issues.
HIV Clinical Resource of the New York State Department of Health AIDS Institute
While mostly for medical professionals in AIDS care, this site also offers a variety of resources for reasonably HIV-savvy patients and caregivers.
HIV Medicine Association
While mostly intended for medical professionals in AIDS care, this site also provides information on expanded access programs for new medications and clinical trials, patient assistance programs to help pay for medications, and a wealth of other links. Click on "Resource Links" or "Advocacy" at the top of the page.
IAPAC International Association of Physicians in AIDS Care
While mostly for medical professionals in AIDS care, this site also offers information about dosing of antiretroviral medications, a patient guide to anemia and HIV/AIDS, booklets for patients on the classes of antiretrovirals and drug resistance, etc.
Johns Hopkins AIDS Service
Mostly designed for doctors, but with a variety of patient-oriented features also, such as the "Question of the Week," and other materials accessible to the relatively savvy layperson.
Medscape HIV/AIDS Information
While mostly intended for medical professionals in AIDS care, this site provides a wealth of treatment information accessible to the reasonably medically savvy layperson. A weekly e-mail news bulletin with links to the site can be signed-up for from it.
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